PROPOSED CANCER CELL DATABASE (Subjected to the researchers input and modifications.)
1. Build a cancer Facebook type database of all information known about cancer cells.
2. Each country’s cancer research group is responsible for the accuracy and timeliness of their data.
3. The database will be open to all peoples on a read-only-basis.
4. An electron microscope picture of the cell; the receptors on the outside of a cancer cell; wall characterization; and the contents inside of the cell will describe Cancer cells.
5. The description process will be modified as the science advances.
6. Research scientists will be responsible for their database elements, but the database is designed for inclusiveness.
7. The database may contain non-cancer cells for control.
8. New cells will be added, as they become available and processed according to specified procedures. When a pattern of knowledge is established, no cells will be added unless they provide additional information.
9. The cancer Facebook type database will be available to do sophisticated searches on all characteristics.
10. Initial database information elements may include:
a) Source of cancer (prostate, colon, pancreas, etc)
b) Electron microscope (or better) picture of the cell
c) External characteristics of the cell (receptors, primary cilia, etc)
d) Wall characteristics
e) Genome (DNA) characteristics
f) Dark Matter (is there a better technical term?) characteristics
g) Other matter, such as stem cell matter
h) Name, email address, phone number of the submitter
i) Data entry country
j) Authorizing agency
k) Drugs/procedures/trials and results affecting the growth, spread.
l) Where the cell is stored
m) Date when data is added or modified
n) Other information useful to researchers
o) The name, address, and phone number of the donor to track the progress. (Acquisition and disclosing of such information shall be in accordance with HIPAA, other applicable laws and ethical standards.)
p) The name, address, and phone number of the attending physician to track the progress of the cancer.
q) Contact information corresponding to the various areas of research incorporated in the information provided.
As important as having cancer cell information in one place, it is critical to build software to process huge volumes of data into meaningful, connected, actionable information. Large-scale data/information management software is required. (This is similar to the FBI’s face identification and Facebook’s marketing analysis.)
BENEFITS OF A CANCER CELL DATABASE
With a patient’s cancer cell characterization, the doctor/patient will better know what the patient is going to face and not be as dependent on trial and error in determining the most effective treatment.
1. A single database will provide a single place to look for information making research more efficient and available.
2. Discipline in the database administration is critical.
3. Communication and collaboration in the exchange of information are critical to efficiency and speed in determining how to prevent and/or cure these deadly diseases.
4. Cost effectiveness of research is likely to improve by avoiding duplications and highlighting where more research is needed.
R. Chutter 6/28/14